In Memory of My Cousin Angie April 16, 2009
If you’re not related to me, I expect there is a slight chance you have not heard much about a disease called cystic fibrosis–a genetic condition that creates enormous problems for those who suffer from it, most notably in terms of lung function and health. At this point, despite some treatments that extend and promote general quality of life, there is no cure. Sadly, because of a lack of a cure most of those affected by the disease pass away before they reach 30.
I lost my cousin, Angela this past year to this awful disease. She had a fighting, feisty spirit and made everyone laugh, even when she was having a difficult time as her lung function decreased. Her sister Kim, who is older than she is (almost exactly my age) is living with the disease and at the time I am writing this, is waiting for a lung transplant.
The girls have another sister, Michelle, who is not affected by CF directly. This has been a difficult time for her parents as well. When I think about it, I see how we are all–everyone who knows the Badertscher family–affected by the disease. It has made us all painfully aware of the fragility of life and at this point, more importantly, the critical nature of clinical research to help find a cure.
I am collecting funds to place as a direct donation to the Cystic Fibrosis Foundation in Angela Badertscher’s name. To read more about the event behind this drive and to read about Kim and Angie and the awful disease that requires more research and effort to cure, click this link where there are some great pictures of Kim and Angie and a full description of their battles: http://www-new.onu.edu/system/files/2009_Run_for_the_Roses_Registration_and_Information.pdf
The run for the roses is going on the first weekend in May and I plan on taking part. Since we live so far away from many of our friends and family members, I decided that the best way to collect donations would be to do something on this site where folks can securely donate using the following method. I have used it on several of my websites and have never had problems. If you’re not comfortable with that kind of thing (ahem…mom) let me know.
UPDATE – Donation window is closed. Thank you so much to everyone who donated and helped raise $250.
Thank you all.
The Paper Dress March 1, 2009
On Sunday morning before we left for home, Bee was playing in tissue paper from her Grandma Sue’s brithday present, wrapping it around her waist like a little skirt. Always one with an eye for style, Grandma Sue immediately got the idea and within a few moments, fashioned The Bee the most marvelous paper wedding dress–complete with a little flower top for her veil. Bee walked around the house like a little princess and stopped to stare at herself several times and was delighted with her makeover. I really could not stop taking pictures and couldn’t choose which ones to put up here so I just put them all here for now.
Visiting Cowtown for the Weekend February 28, 2009
It’s been a busy week and I am only just getting around to going through and posting pictures from last weekend. We went to Cowtown to Grandma Sue’s with the intention of seeing Bee’s cousin’s Connor and August. Unfortunately, Connor had strep throat and had to stay home but Bee got some quality time with August and the two had a great time. Aunt Danielle stopped out at the house and hung out with us for the evening, which was great. Here are just a few pictures of playtime…
More Pictures from the Holidays… January 2, 2009
These are mostly the same events as seen in my previous post below and whatnot, but I ran out of room on my camera rather quickly and the ones on my first holiday post were taken with my Berry. The ones right here below are of higher quality and there are some great ones. It’s hard to believe the holidays are over now and that it’s already 2009; where did the time go?